Here are some helpful links. Whether you are a patient with Dysautonomia, a friend, a caregiver, or a medical professional, knowledge and resources are essential in managing the condition and spreading awareness of this illness.
Dysautonomia:
Dysautonomia International
Dysautonomia Information Network (DINET)
Dysautonomia Advocacy Foundation
National Dysautonomia Research Foundation
Dysautonomia SOS
Vanderbuilt Autonomic Dysfunction Center
http://www.ninds.nih.gov/disorders/dysautonomia/
Dysautonomia Youth Network of America
POTS:
Dysautonomia International: POTS
DINET: POTS
Wikipedia's POTS page
Myasthenia Gravis:
Myasthenia Gravis Foundation of America
Mayo Clinic's Myasthenia Page
Myasthenia Gravis Association
Muscular Dystrophy Association's Myasthenia Page
Research Fundraising:
Greg Page of The Wiggles has Dysautonomia and started the Greg Page Fund for Orthostatic Intolerance
This is an ever-growing list so if you know of other useful links please let me know!
No comments:
Post a Comment
Comments are much appreciated!