tag:blogger.com,1999:blog-9220835700586365061.post4353916079304022346..comments2024-03-28T07:17:59.260-07:00Comments on Kind of Broken: The BeginningStefani Sheahttp://www.blogger.com/profile/08910011148626052717noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-9220835700586365061.post-32018935841857353122014-06-24T23:57:36.028-07:002014-06-24T23:57:36.028-07:00Yes! I have been trying to find a way to share my...Yes! I have been trying to find a way to share my experience. I want others, with a chronic illnesses, to know that they are not alone in this fight. Even a medical professional (I'm a nurse), has dealt with misdiagnosis (Anxiety and "The It's all in my Head Phenomenon") and being dismissed by Doctors. I too, had to advocate for myself, especially when abandoned by family. Finally, my 4th Cardiologist was aggressive and pointed me in the direction of PoTS. <br />His knowledge was limited and I did a ton of research and sought out Autonomic Specialists. <br />I don't fault some of the doctors. I never learned about some of the chronic conditions in Nursing School. I've learned so much. I do have an issue with the ones who were not willing to learn and find the cause. <br />I felt a great way to share my knowledge was to post on social media with hash tags. But, thought family would think those actions were attention seeking. <br />So, I'm still uncertain how I can share. Brain Fog and other Cognitive Difficulties make it a huge effort to write. I found it easy to share links with information. I've thought about starting a social media page dedicated to sharing resources and articles. <br />Anyway, thank you for sharing your experiences. It really does help with the loneliness. It's unfortunate to say, but it helps knowing you are not alone. <br /> Much Love and Appreciation, Maria Anonymoushttps://www.blogger.com/profile/09433074938336533723noreply@blogger.comtag:blogger.com,1999:blog-9220835700586365061.post-1966112218371256862014-06-03T18:19:14.073-07:002014-06-03T18:19:14.073-07:00Thank you Maria! I do hope that it is helpful. It&...Thank you Maria! I do hope that it is helpful. It's very cathartic to write about it Stefani Sheahttps://www.blogger.com/profile/08910011148626052717noreply@blogger.comtag:blogger.com,1999:blog-9220835700586365061.post-78779340776550757132014-06-01T17:00:05.637-07:002014-06-01T17:00:05.637-07:00I'm very excited...I just found your blog!
Th...I'm very excited...I just found your blog! <br />Thank you for taking the time to share your experience and information. <br />I look forward to reading each post and sharing these wonderful resources!<br />Maria Mongillo :) Anonymoushttps://www.blogger.com/profile/09433074938336533723noreply@blogger.com